Damn, damn, damn.
We can look forward to (probably) another long round of doctor appointments and examinations which she will HATE and possibly more surgeries for her (she's already endured open heart surgery and surgery on both eyes), and lots of followup therapy.
I had really hoped we were through with most of that.... we still have two to three therapist visits per week now, mostly for the delays the girls experienced due to their extreme prematurity (28 weeks), but the therapists come to our home, fortunately. But we had daily hospital visits for their first six months, then tons of medical appointments the next six months. It got REALLY old. I thought we had been freed from all that. :-(